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Anyone dealing with Cluster headaches for many years?

Chronic Pain | Last Active: Sep 27, 2023 | Replies (6)

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@JustinMcClanahan

Hi @benchi300, were you able to see @vellen's response and what they have used to help with their symptoms? I'd like to also invite @faithann64 and @jalo as they also discussed experiencing and struggling with cluster headaches/migraines.

@benchi300, was verapamil what has been prescribed to you? How are you currently managing your cluster headaches?

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Replies to "Hi @benchi300, were you able to see @vellen's response and what they have used to help..."

I have a chronic form of cluster or hypnic headaches. Basically everytime i go to sleep i wake up with a headache. When it started 12 years ago it was more the severe form that usualy comes with cluster headaches , but it quickly became like a chronic dull type tension headache form. I've tried many medications to prevent them over the years but never tried verapamil. a lot of medications loose there eficacy over time or has too much side effects. Ive tried botox 2 months ago but havent notice any change at all. My neuro is open to me trying emgality to see if i get any relief from it. Anybody here had long time relief with short rounds of prednisone ? i havent tried verapamil yet, will talk about it to my neurologist. Thank you