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@pontiac

For me my sugar would drop in teens, constant glucose monitor are a must for safety. My levels get so low I pass out . Sleeping was impossible. Dropping low enough to pass out is horrible feeling. Food did not impact mine. Every neuroendocrine tumor patient is different. But if you can't sleep because of it the diazoxide is a life saver. It's given me back some quality of life. I still do not drive after totalling my truck a year ago. My one piece of advice do not wait, be your own advocate and push for treatment. There are plenty of treatment options. Endocrinologist are experts with functioning neuroendocrine tumors that are disrupting the endocrine system, regular MDs are not qualified.

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Replies to "For me my sugar would drop in teens, constant glucose monitor are a must for safety...."

They tried the diazoxide on my husband but he had a bad reaction so ended up on once monthly octreotide along with his other chemo treatments. You are right, everyone has a different reaction to treatment and because of the rarity of metastatic insulinoma it is important to find a good oncology/endrocrinology team. Wishing you the best.