← Return to Be aware of the rare cancer called sarcoma

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@liz2566

As of this week I was diagnosed with a rare sarcoma. NUTM1 rearranged colorectal sarcoma. I had surgery in August to remove the tumor and several lymph nodes. After a PET and MRI, did not show any cancer. I will have scans every two months to check to see if anything shows up. Since it is so rare, from what I have found only 6 cases prior to mine, there isn't a treatment option. I guess at this time, I will just live each day and not worry until there is something to worry about.

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Replies to "As of this week I was diagnosed with a rare sarcoma. NUTM1 rearranged colorectal sarcoma. I..."

Hi @liz2566, you may wish to join the discussions about sarcoma here:
- Diagnosed with sarcoma? Let's share
https://connect.mayoclinic.org/discussion/diagnosed-with-sarcoma-lets-share/
How are you doing with recovery from surgery?