← Return to Any Long Haulers have Ulcerative Colitis from Covid

Discussion
Comment receiving replies
@aw7711

I’ve had colitis for years but it has been much worse since I have long covid. I now have asthma which developed a couple of months after Covid. I tried Budesonide but my GI doc said this was a short term drug. I’m now on Cholestipol which has helped some. I also take trade name Imodium which requires a prescription but is much more effective than the OTC brand. My diet is very restricted. No dairy, no tomato sauce, no concentrated sweets, carbonated drinks, no grains. I usually eat a regular bagel for lunch and chicken noodle soup for supper. This is nuts. I’m scheduled for a Colonoscopy in December. I kept reporting this symptom when I got texts checking up on vaccine side effects but I have no idea if this is just from COVID .
I was out from work a month last year. I have a very compassionate Internal Medicine doc who has helped me through this. It seems many people don’t believe in this aftermath of COVID.

Jump to this post


Replies to "I’ve had colitis for years but it has been much worse since I have long covid...."

Good morning..thanks for your reply. This is so true what you said, many people do not get it. We sound so much alike. My diet is so limited also. I think when they left me on the budesonide 9 mg high dose for 9 months that made my colitis and overall health go downhill from the high dose with the side effects. Covid has taken us to a level that no one can explain. I was in urgent care last night again. I have a cough that is unreal. I probably have Asthma now too. The PA prescribed Albueterol inhaler to loosen things up. What is Cholestipol? Did they put you on biologics at all? They scare me with all the rare side effects. I never know what my day is going to be like on any given day. Kitty 2

Hi again, I forgot to ask you what state and city you may be in. I am looking for a new doctor that is compassionate and understanding of this disease. I am in minnesota. I had a repeat covid test last night, and it was not detected this time, probably Asthma like you. I also had the the Johnson and Johnson vaccine one day before they pulled it off the market. Thanks for all your help. Us long haulers need to stick together because we get it. Thanks Kitty2