I've heard of Patient Navigator before, but unfortunately forgot about its existence and purpose. I totally agree with you that such an Neurology PN would be incredibly helpful and a veritable blessing! I've been doing all the work, for myself and my husband, for years. Exhausting. Frustrating. HBP raising experiences! And in my case especially, I am so tired of hearing the dreaded words "Sorry, but there is nothing more I can do for you, and no one else to refer you to other than Pain Management." Translation: "Accept your conditions and what pain specialists decides is best for you, learn to deal and live with it, and best not to ask me for any more medical help."
I'm going to contact my insurance company today, to investigate the aspect of Patient Navigator. Thankfully, we both have excellent insurance so perhaps that does exist, even if by some other title.
The thought does arise that a PN may well exist as a private entity, available on a fee schedule.
With all our medical issues, including both of us dealing with complex neuropathies and me with chronic pain syndrome, I can imagine that we would fill their time substantially...
I'll let you know what I find out.
Hi, I'm new to polyneuropathy. My neurologist recommended PT. I don't know how that will go but I'll give it a try. I enjoy walking, biking and hiking. I want to be able to continue doing these activities. I still have at least, hopefully 6 years of work as a PE assistant teacher. Is anyone else going through this??