Replies to @windyshores Dont know. Doc seemed to be having long appts with people yesterday. I was happy….

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Autoimmune Diseases | Last Active: Sep 27, 2023 | Replies (26)

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@jerrysgirl3

@windyshores Dont know. Doc seemed to be having long appts with people yesterday. I was happy. I get in and he's like "ask your questions but quickly I have another patient waiting" 😳😳. Really?? So of course I get flustered but I ask my questions and his answers did nothing for me. Couldn't take labs cos he was short staffed but gave me a script and handed me printouts on the meds. I think the meds will kill me! I am not feeling at all well this am. I feel so dehydrated but have already had 4 glasses of water and it's only 7:30 am!! I haven't even had a bone marrow biopsy!! I need my doctors to talk to each other!!! I literally feel like I'm dying....and I'm afraid.

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Replies to "@windyshores Dont know. Doc seemed to be having long appts with people yesterday. I was happy...."

jerrysgirl3 | @jerrysgirl3 | Sep 23, 2023

@windyshores
No the SLE was not affecting my organs until he put me on hydroxychloroquine. I don't think I needed it and it totally screwed me up. Are you in any meds? I think docs are prescribing before they are needed. This morning I took some
Liquid vitamins and I feel
Great!!!! It's so unbelievable since I was so bad yesterday!! Im having no breathing issues. Or fatigue 😳. Almost normal!! It's so crazy. It's like my body had a total vitamin deficiency!! I actually think one of the anemias listed talked
about folate and B12 which this vitamin has a lot of
The b vitamins and organics as well. I'll take the day even if it's only one!! I didn't complain once or feel bad!! Yesterday I was sure I was dying....

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