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Autoimmune Diseases | Last Active: Sep 27, 2023 | Replies (26)
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It's so hard when you are dealing with different specialties, some of which have treatments that conflict. I do not know the answer here but I know that as a cancer survivor (so far) with a lupus diagnosis (but mild) my docs have been reluctant to prescribe a bone med that affects the immune system. Is the SLE affecting your organs?
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@windyshores Dont know. Doc seemed to be having long appts with people yesterday. I was happy. I get in and he's like "ask your questions but quickly I have another patient waiting" 😳😳. Really?? So of course I get flustered but I ask my questions and his answers did nothing for me. Couldn't take labs cos he was short staffed but gave me a script and handed me printouts on the meds. I think the meds will kill me! I am not feeling at all well this am. I feel so dehydrated but have already had 4 glasses of water and it's only 7:30 am!! I haven't even had a bone marrow biopsy!! I need my doctors to talk to each other!!! I literally feel like I'm dying....and I'm afraid.