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UTI or urinary retention and inhalers

Kidney & Bladder | Last Active: Dec 3 8:31pm | Replies (28)

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@rowun4

I’m on Trelegy.. max dose. Rarely had uti issues, but back in April all sorts of bad things started, requiring pulmonologist and allergist/immunologist. No one knows what’s happening or at least isn’t telling me. I’m a Veteran, so I think they feel I was exposed to something. With the added smoke from the wildfires. I’m stuck. I think I have another uti, but just got off of antibiotics in July/August for a sinus infection. They’ve tried oral steroids, low dose antibiotics in April. Then the Ready Care gave me a mega dose. I don’t smoke or drink..
Has anyone else had issues with Trelegy? It’s worked well in May, but if it’s going to get me into antibiotic resistance.. it’s not worth it.
New doctor time? They want to try Tezspire injections but won’t tell me much about what can happen…

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Update: Tezspire injections started. But took 5 months after insurance prior authorization went through. No one told me that insurance would pay for it. Why? The doc’s practice didn’t want to pay for it first & get reimbursed. So all the infections & steroids during the summer were because of MONEY. I was told quietly by a nurse that if it didn’t kick in by 6 months it might never will. I just had my 5th dose. O2 keeps going down. No recent steroid use. But now it’s been 2 months since he tried to push through a script for a new rescue inhaler.
OY!! Word of advice to anyone: chase it. No one at the insurance company gave me the direct response (started in May ‘23) until August. Had to squeeze everyone & play dumb at judicious times to get to a supervisor type to explain.. I have another “situation” that is going to make things worse, gotta get surgery. Oh, & try a sleep study. They’ve tried helping my breathing (sarcasm here), & just finished figuring out my O2 levels were dipping into low 80s when I slept. After 6 sleep studies. Sorry for TMI.. just tired.
Thanks for reading this all if u did. Hopefully something helps someone.

I often think that doctors don't really know enough about these meds. I've been on trelegy for years. I still struggle with breathing. I wish I knew the answer.