I have been on this journey for a short time, so I am not qualified to give advice. I was lucky enough to have my primary physician and my gastroenterologist in my corner so we came to my diagnosis after five months. Very quick and not the norm. However, before the doctor did a PET scan, I knew I had carcinoid syndrome/tumors. The symptoms were textbook and my CGa was 2480. I have had two PET scans in the last 8 months and they could not find any tumors. My Cga is in the normal range for the last 3 months. My oncologist says they are micro-tumors and due to the symptoms, they know they are there. The Lanreotide can be difficult on your system. I believe that if you want to keep these tumors, no matter their size, at bay you have to stay on the Lanreotide or whatever chemo they have you on. It will save your life. Modifying your diet to lean proteins will help especially around the injection time. I confess that I am not always good at the diet part. Since I get my injections every three weeks, my turnaround is quick. For cd1b hang in there, I have not had to walk in the path or suffer through prolonged chemo or radiation that you have endured. My heart and prayers are with you. For willowme1963, my current oncologist has another patient on Lanreotide for over 15 years. He is doing well, like all of us puts up with the pain, flushing, and dizziness at times. Please know you are not alone and I am thinking of you and sending heartfelt prayers. It isn't something we signed up for but we must persevere. Our treatments might help someone else. There is not a cure...yet! But we can hope someday they will find one for the family of neuroendocrine tumors.