@paulagcl and others -- I have (finally) found a second person i know who has PMR! His experience, however, is unlike my cousin's. My cousin tapered off successfully in about 1 year with no relapse - his PMR occurred about 10 yrs ago though.
For my other friend, the onset was 3+ years ago , before the pandemic, and he is unable to taper below 7.5 mg. I was searching through our CONNECT conversations and found helpful info to send to him - including that patients are now on KEVZARA! So Paula - how are you feeling ?? Good I hope : )