Hi @leilab1…I’m always so cautious when tossing out ideas because I am not a doctor ‘nor do I play one on TV 😅” but there are things I can say from experience which may sometimes give a nudge to someone else…that’s all. ☺️ I’m happy if this change in meds helps your son.

I also hope I can ease your concern over the Pentamidine treatment. This is important for him to receive monthly. It’s a breathing treatment meant to protect his lungs from serious Pneumocystis pneumonia that can develop in immunocompromised people. If the treatment does increase his blood sugar his team will be on it and treat accordingly. But don’t let him skip this treatment.

You have to understand, at this point in his transplant, all the rules for what you know about ‘normal numbers’ are off the table. He’s going to have blood numbers, liver numbers, kidney numbers, etc… going up and down for the next few months. Everything in his body is in a state of flux.
If his glucose goes high during a treatment don’t worry about it. This doesn’t mean it will change his numbers for the rest of his life. And if so, then that will be dealt with at the time.

Honestly, it sounds as though Alex’s recovery is really becoming routine and he has a great team on top of everything. I think you can start relaxing about his recovery. ☺️. Though, don’t be surprised by a little excitement tossed in from time to time.

I learned the key to survival with a bone marrow transplant is to always keep flexible, have a sense of humor and a sense of adventure. Life is never boring. But there is a life…Alex will come through this on the other side and he’ll feel pretty invincible for what he’s gone through, overcome and survived! I’m 69 and feel like Wonder Woman… sigh…but lack her body. 🥴