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@jessicanell

I am with you in a way, as I keep going in and out of this way of thinking... They know best, they have the most experience with this, they are weighing many factors — most of which I am definitely not an expert in.

I asked during my treatment if one could have mets to other organs without going through the lymph nodes and the answer I got, reluctantly, is yes. So that's disconcerting.

I agree it is about control — this has been such an out of control experience and so this is what I do as a Type A person. And there is the cost factor, and people who need it more than I do.

I am highly skeptical of what I see as our mostly profits over people, patriarchal health care system. Given the rate at which this cancer impacts and sometimes kills women, I think we deserve aggressive treatment, and full pictures of our disease. I spoke with a woman who found she had not one as they had biopsied, but 4 tumors upon her post biopsy/diagnosis breast surgery. I asked if she had an MRI before her surgery. She's a nurse. She said she did not qualify for one through her insurance. To me that's infuriating.

How can I as a breast cancer survivor with dense breast tissue go back to the same routine, yearly mammogram schedule when that likely missed my cancer to begin with?

I don't know - this is what's on my mind right now. It's clearly much more typical to trust in the care I am receiving and quietly go on about my life. But for some reason I can't.

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Replies to "I am with you in a way, as I keep going in and out of this..."

I certainly understand. But I also came to realize that I probably wouldn't accept chemo if they offered it to me right now. I have heard that the chemo used on triple negative is often particularly brutal because they don't have the targeted options that they have for other types. It kills cancer cells AND health cells, can cause heart damage, etc. I'm 68 years old. Do I want to make myself very sick right now in an effort to try to prevent future illness that may never occur? As I've started resuming my "normal" life, I realize that I don't. If there was some known cancer left in my body, perhaps. But I am old enough that my goal is not just to stay alive longer. I want to take whatever is left of my lifespan and try to live it well.

This is just me. I know it may be very different for women of different ages and backgrounds. Those who are younger and raising children obviously have different priorities. I don't like a lot about our healthcare system in the US but I still have much to be grateful for that I have it.