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Dialysis - Stories and Questions
Kidney & Bladder | Last Active: Nov 7 5:37pm | Replies (44)Comment receiving replies
Hello' thanks for three reply. I started trying to contact one of the volunteers on her chat group. And I don't do chat groups or know how the whole thing worked. So I keep trying to get on contact with her. So when I started the first post I filled our the questions it asks to start one not knowing how it was going to be worded and it didn't think it made sense after it posted. Then I kept trying to talk to the one volunteer. Now unfortunately it hasn't been working well. I say what's going g on and she keeps asking what's my concern. And I keep saying it. So not sure these chats are meant for me to get help with. Agin I love all the support everyone gets form this and all the information that everyone has but I haven't been as lucky.
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Thank you @johnbishop for jumping in. I like your suggestion of merging the 2 discussions. @jessgarduno30 you refer to “chat groups” and say that you “don’t do chat groups”. I don’t either. In fact I’m not even sure what they are. In Mayo Clinic Connect there Groups that refers to a broad category such as Kidney & Bladder. Within that are Discussions that narrows the field to a particular topic. This Discussion is “Dialysis - Stories and Questions”. You started 2 other Discussions largely focusing on GFR. You said you “started trying to contact one of the volunteers on her chat group”. In the 3 discussions you posted in 2 Volunteer Mentors have responded: @gingerw and myself, @cehunt57; also @johnbishop regarding using Mayo Clinic Connect. For the most part members join Mayo Clinic Connect, choose Groups to be involved with and participate/post in Discussions that are of interest to him/her. It is a sharing of experiences & information to support each other in our health journeys. We don’t diagnose or prescribe because we aren’t (and can’t take the place of) professional providers. It is possible to send a member or mentor a personal / private message. I don’t remember how at the moment and generally don’t use it often because that limits the benefits to the other members.