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still having seizures and MRI is normal

Epilepsy & Seizures | Last Active: Sep 26, 2023 | Replies (14)

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@tonyde

Too many doctors, including neurologists don't fully understand epilepsy. Doctors will fail to diagnose seizures in spite of overwheming evidence. I had a grand mal seizure in the hospital, I overheard the on-call hospital neurologist say to the nurse, "I would have thought he was faking had I not saw that". the nurse replied "we called in the stroke team". What he saw was my blood pressure exceed 300/140 and heart rate over 120 BPM. This is what I've learned over the years (1) an EEG will only confirm epilepsy if there is seizure activity at the time of the seizure and (2) an MRI may show the possibilty of seizures, however your doctor needs to properly interprete the results as seizure activity. My seizures started over 20 years ago, it took 5 years for my neurologist to find the right medication cocktail to control my seizures. Unfortunately, I started having break-through sezures 3 years ago, worst then ever. Only recently did an MRI confirm my seizures, dozens of MRI's over 20 year didn't. I've had the same neurologist 20 years, he reconized my seziures early on and started treatment when he saw the small strokes I was having because of them. I could have gone a lifetime without treatment had it not been for him. A stroke does permanent damage, a TIA temporary, a seizure may cause either. A seizure patient having a seizure-related TIA may show no evidence of a seizure because a TIA may heal. NEVER GIVE UP TRYING TO GET PROPER DIAGNOSIS AND CONTROL OF YOUR SEIZURES REGARDLESS OF WHAT DOCTORS MAY TELL YOU.

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Replies to "Too many doctors, including neurologists don't fully understand epilepsy. Doctors will fail to diagnose seizures in..."

@tonydez1967 Hi
What does TIA stand for?
Thank you!
Chris/Santosha