Connect
← Return to Benign fasciculation syndrome (BFS)
Discussion
Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: Nov 14 4:35am | Replies (415)Comment receiving replies
I am experiencing this same thing. I can’t sleep at night. I went for an emg and the neurologist diagnosed me with benign muscular fasciculation and told me to try Xanax. I refuse to take Xanax as the answer. I’d like to know what’s causing my involuntary twitching. I have tried supplementing with calcium, magnesium, and vitamin D. I tried tonic water from the advice of my naturopath. I’ve cut back on caffeine and nothing seems to be working. Please help!
Replies to "I am experiencing this same thing. I can’t sleep at night. I went for an emg..."
I so know what you’re going through…. It’s been almost 5 years for me with constant twitching…. In perspective about 20 twitches an hour in different places…. Sometimes even the sides of the bones of my knee and elbows….. mri… hosts of other tests such as an Ana for auto immune diseases… all normal…. No muscle weakness… I’ve actually got much stronger with my exercise routine… still twitching…all I can say is I don’t let it bother me anymore…. But at first I panicked thinking it was ALS or late onset MS .. sometimes BFS goes away on its own or be lifelong…. I narrowed down when my symptoms started… I had a ongoing tooth infection that I let slide for months before taking care of it
Connect
Hi,
Yes, it is very frustrating! I also tried what you have tried with supplements and tonic water. Some days are worse than others but I do know it always is better when I am not thinking of it, which is easier said than done. I am going to get a 2nd opinion, but it sounds like time and reduced stress/anxiety is really the only treatment. My neuromuscular specialist said because it is benign, there is limited research and not very many treatment options. If I find anything that helps, I will reach out!