Good morning my lobular sisters. Love this subject about imaging and how we are the unfortunate gals whose cancer is unlikely to show up, yet they lump (no pun intended) our treatment right in with ductal as if it's going to work. Are there any large groups out there advocating for more accurate imaging, like the MRI, for lobular cases? We deserve a fair shot at being detected early like everyone else! Mine was detected in 2012 and dismissed, then diagnosed in 2017 (same exact area) followed by a DMX. Maybe all of those million$ they raise for awareness could be used to help us? I think we're all pretty aware now. The 10 to 15% of us need to be acknowledged. 😤
I am also in a position I am very angry about, I have no oncologist. I moved and I interviewed one at Florida Cancer specialists and she did not know much about lobular. The one before that also didn't know much. I am weary of educating people with medical degrees on how lobular is different.
When I get a little more settled in my new home, I think I will be doing a lot of research and contacting some big names and groups with big money to see what can be changed. If they need a louder voice, I would invite you all to make some noise too.