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Multiple Autoimmune Diseases & Post Covid
Autoimmune Diseases | Last Active: Oct 12, 2023 | Replies (113)Comment receiving replies
Really appreciate your response! I have had X-rays and MRIs from the brain down. I was initially told that nothing was seen, but always had a trusted physician review. My true feeling (and I am not talking about conspiracy) is that Stanford told me this was all in my head for a year because they didn’t want to report it. My primary, and then surgeon (from a fractured ankle 7 years ago) reviewed my imaging and said “get out of here for this, you are full of inflammation!” I have seen several rheumatologists who have thrown their hands up in the air. They seem to want everything to be text book and this just isn’t the case. I will ask for these labs. Once my CCP and RA tests were done, it was finally acknowledged that I had a problem. I don’t feel it is RA. I have been pushing myself until about a month ago. I had to scale back, but my muscles were deteriorating even with pushing through. I’m not disputing what you are sharing at all - just letting you know what has been happening. Thank you for your response. I’m actually going to read it again later. I’m also going to upload some pictures later. Strange things. I woke up one morning with a knee the size of a melon. My non surgical ankle one morning the size of a baseball. It’s so odd to have things pop up out of nowhere. I’m sorry that you are in a similar situation. I actually just got a couple of referrals for therapists today. It is too depressing for me to manage on my own. Again, thank you. Since this happened post vaccines, I’m looking for a more forward thinking specialist. I’ve seen the one size fits all and they get frustrated with me because I’m not responding to their treatment. I will share anything that I learn along the way. Best to you!! How long have you been enduring this?
Replies to "Really appreciate your response! I have had X-rays and MRIs from the brain down. I was..."
I have had systemic lupus for 40 years and RA for about 12. I now have CIDP (chronic inflammatory demyelinating polyneuropathy) a peripheral neuropathy with muscle wasting. In addition I have monoclonal gammopathy (MGUS) which also causes the same symptoms. The MGUS can be tested by a blood test- serum protein electrophoresis. There’s no specific test for CIDP but high protein in spinal fluid supports the diagnosis if you have the clinical findings. These 2 are both rare. A neurologist would be appropriate to consider these. The blood tests can all be done by your PCP. I would check out CIDP on the internet to see if it describes your symptoms.
I’m all too familiar with textbook case rheumatologists.
Resonating on how you feel, I am pretty much tired seeing doctors and diagnostics exams blood test, it has been 2 years and 7 months since my jabbed. My joints and muscles are unpredictable, like you are walking, then instantly your ankle, your knee, your toes it hits with the excruciating pain and jabbing pain, and the burning pain are annoying. Sometimes I soaked in epsom salt or steamed bath! It gave me some relief.
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Depression is hard. I'm normally a 100% anti-depressed person and even I got a taste of depression going through these past few years.
There is a movie-documentary coming out in October called After Death. Several of the testimonies in that documentary are in a book I read called, "Imagine Heaven," by John Burke. This knowledge can truly change how you face life. It's easier to take on challenges without fear. The fact that this is all temporary makes it easier to defeat this world has thrown at you.
With faith you have hope. With hope you have JOY. I don't see how you can have joy without hope nor hope without faith. And Joy is the depression killer.