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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@rwinney

Good morning Hank
Thanks for reaching out in this thread. Amazing about Fuchs dystrophy! Its uncommon and I've inherited it from my father who, in his 60's had full corneal transplants. I progressed quicker unfortunately, but knock on wood, my vision is incredible now. Amen! The photophobia remains but I decided long ago to accept that over poor vision. MS was a concern at one point but my spinal tap ruled out auto immune diseases. I'm glad to be Mayos guinea pig for possible better conclusions. I've often wondered if my health conditions were a round about way of slowing me down and making me pay attention to myself for a change verses everyone else. Not only has this been a physical journey but, a mental one as well. Regarding Small Fiber Neuropathy and its underlying cause...yes, b12 has been regulated and specific symptoms have vanished, however, I feel I've been left with some pretty poor "souvenirs" which makes me feel idiopathic in the end. Finding my underlying cause has not been this huge revelation in my so called fix. I feel like the damage has been done. And I love your analogy of a broken down car! I agree. I've referred to this myself actually and thought myofacial release is like going in for a tune up to help keep the car running, and healthier foods is like putting good gas in your car, etc, etc...
Be well today Hank and if you (or Linda, via you) ever want to talk further (so we don't completely bore the other readers - wink, wink) please feel free to private message me.
Rachel

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Replies to "Good morning Hank Thanks for reaching out in this thread. Amazing about Fuchs dystrophy! Its uncommon..."

@sunnyflower Hello, I'm answering your response to "My Neuropathy Story" in this thread in order to try and keep that thread with facts only for future neuropathy sufferers.

I very much appreciate your kind words and thoughts. I agree, this has been one tough journey for us all. I'm happy that you turn to your faith to see you through and wish you the best going forward. I hope positivity remains in your heart, despite your pains.

I must leave you with 2 emojis....🌞 🌻 Sunnyflower

Be well-
Rachel