Hi Rachel, in the spirit of John's desire to keep the "Share you neuropathy stories" discussion cleaner, here is my reply to your last post from over there made on 5/13 (John, @johnbishop sorry for posting replies over there initially):

Rachel, you mentioned that you do have some ability to walk. That is VERY good. Hopefully that will not get worse so you can at least mobilate to do at least the basics around home. But odd that the legs developed this condition. Sounds similar to MS. If it were MS and they have MRI'd your head since it developed they should have noticed lesions. If it was never looked into before this you might bring it up with your PCP. You have also mentioned before that your hips or upper legs have on occasion sort of frozen up like stone or something, which must be related right? If this started from a b12 deficiency it would seem like this stuff would all be getting better right, assuming you are absorbing enough b12 now? Perplexing. Must be more going on, no? (Right, you're saying, but what???!!!). God help anyone who develops either a nerve disease or an endocrine related disease. The two great unknowns to medical science. I'm sure advances are coming, but in our lifetimes? Maybe not.

One thing you and my wife have in common it sounds like it perfectionistic tendencies. As well as being a tad driven (busy busy busy). This was always my wife, in younger days. Illness has slowed her down and softened her perfectionism (somewhat). It seems like there may be a connection between those traits and the illness that has befallen you both. One thing about illness, it gets your attention, whether you like it or not. You have to stop and pay attention, which in a way is a good thing, or would be without the steep price tag. . Another commonality you have with Linda is corneal disease. She was diagnosed in 2006 with Fuchs dystrophy, and the doc told her she would eventually have to have corneal implants. Though her sight has worsened since then her current eye doc has told her that she should not worry about it until it's time for her to have her cataracts removed to have her corneas replaced. My wife's body and my old Datsun 710 which I owned back in the eighties have a lot in common. They are/were both broken down in a lot of ways and much has had to be jury-rigged to keep them both going. They both have (or had) long medica/mechanical rapsheets. Linda's has grown and grown as it sounds like yours has, though in your case it's happened much faster, 4 years as opposed to, how many for Linda, 20? 30? Anyway, you both are inspiring to me.

I will end for now. Best, Hank