Connect
← Return to Anyone here dealing with peripheral neuropathy?
Discussion
Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)Comment receiving replies
@jesfactsmon Hi again, Hank, The problem with learning about CS, is that once you know so much, with nerve disease, there is little to be done about it anyway. The ineffective meds are the same, the methodologies for dealing with the pain, and perhaps, even making it go away, do not work. I really don't care particularly about the intellectual exercise of understanding it, when still, nothing much helps. I just took my Kratom pills, all 9 of them, and in about 15 minutes, my toes will feel less twisted up, the throbbing will vanish. I too, have very focal pain. Only feet. But these feet make my life quite unbearable, much of the time. My problem is that I don't like the feel of being high on marijuana, or very sleepy from Kratom. To me, it is barely a life. I am sorry I am so down. Still waiting for my pain doc to call about my DRG trial, and I think I may have a long wait, due to the 2 month surgical back up due to the virus. Meanwhile, I continue my marijuana, Kratom, and do whatever I can do distract myself from pain. To think that just 2 years ago, I was leading a spunky, normal, life, astounds. me. Man, appreciate every minute of good health. Let me know if you find anything useful in your quest. What a husband you are to do this for Linda. She is blessed with such a good husband...….Be safe. Lori
Replies to "@jesfactsmon Hi again, Hank, The problem with learning about CS, is that once you know so..."
Connect
Linda says she agree with you right down the line on every point you just made. In her words she feels that feet, back and head (as in migraines) are the 3 worst pain areas anyone can deal with. She also disagrees with me in my feeling she may not have CS. She says she definitely fits the profile in her opinion and she has convinced me that this is true. I know what you mean about how strange for your life to have gone from night to day (or vice versa) due to this one malady. Linda was WAY more functional prior to the chemo. For one thing she could travel alone back then. She could get herself to the airport, fly wherever and get to wherever she was going. No way could that be possible today even without the lockdown. She has turned into a semi invalid. She also had spunk, stubbornness and a very healthy will (actually that is still intact). PN has taken much of her life away. And mine of course. I am a willing caregiver but I'd prefer to be a partner for doing things, traveling, going places including restaurants which we used to do a fair amount but haven't done much in the last couple of years. When we do get angry about it it's usually her oncologist we focus it on, who was a nazi and made chemo much more of a nightmare than it had to be by upping her dosages to the max. But after the anger subsides we are left in the same place as before. I tell you if it weren't for a strong belief in god this would be hell. Thank heavens for the sense of proportion that that gives to one. Thanks for all your highly appreciated perspectives Lori. We are rooting for you to get scheduled for your trial soon. -Hank