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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)Comment receiving replies
Lori, I am starting to do some reading online about central sensitization (CS) and trying to figure out whether Linda has it. Though she has been sensitive to certain external stimuli since the early 80's, she never had chronic pain until chemo in 2014. Her fibromyalgia symptoms began around 1983 and I relate much of her sensitivity to stimuli to fibro. She is highly sensitive to speed (driving 30 mph feels like 70 mph to her sometimes). She is sensitive to bright lights, e.g. even if someone is shining a flashlight at the camera on a TV show it really bothers her. And like I said before, she startles very easily. She is affected by tiny amounts of alcohol or marijuana, i.e. it takes very little to get her high. She does not experience pain from touch, smells or sounds as far as I know, though she has an acute sense of hearing and smell. I think I am still not sure whether she falls into the CS category exactly or not. Her pain is pretty much localized to her feet and just above the ankles and not so much anywhere else. For that I am very grateful and I hope it stays that way and she does not develop pain in other parts of her body.
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@jesfactsmon Hi again, Hank, The problem with learning about CS, is that once you know so much, with nerve disease, there is little to be done about it anyway. The ineffective meds are the same, the methodologies for dealing with the pain, and perhaps, even making it go away, do not work. I really don't care particularly about the intellectual exercise of understanding it, when still, nothing much helps. I just took my Kratom pills, all 9 of them, and in about 15 minutes, my toes will feel less twisted up, the throbbing will vanish. I too, have very focal pain. Only feet. But these feet make my life quite unbearable, much of the time. My problem is that I don't like the feel of being high on marijuana, or very sleepy from Kratom. To me, it is barely a life. I am sorry I am so down. Still waiting for my pain doc to call about my DRG trial, and I think I may have a long wait, due to the 2 month surgical back up due to the virus. Meanwhile, I continue my marijuana, Kratom, and do whatever I can do distract myself from pain. To think that just 2 years ago, I was leading a spunky, normal, life, astounds. me. Man, appreciate every minute of good health. Let me know if you find anything useful in your quest. What a husband you are to do this for Linda. She is blessed with such a good husband...….Be safe. Lori