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Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Neuroendocrine Tumors (NETs) | Last Active: Feb 26 7:54pm | Replies (77)Comment receiving replies
Hello @spinhead,
There are several members of the group who have had a reduction in NETs (either a reduction in the number of the NETs or in the size) because of the Lanreotide injections. Perhaps each person's NETs respond differently to the treatment.
As @stevestenberg31 mentioned, perhaps another opinion would be helpful to you right now. It might help clear the confusion you are experiencing.
Replies to "Hello @spinhead, There are several members of the group who have had a reduction in NETs..."
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Well I’m going to Mayo on the 11th for my 6 month gallium scan. I’ve been off lanreotide for 6 months exactly since my last scan so I guess I’ll see. If I have to get back on it to keep the slow the cancer down then I guess I have a decision to make. The thing is I’m 71 October 18th so I have to ask myself do I want to live longer with the horrible side effects of the injections or do I want to at least have somewhat of a life but shorter? My faith sustains me and reminds me there “so much more after this” 🙏♥️🤗