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How could they get my diagnosis so wrong.

Prostate Cancer | Last Active: Sep 20, 2023 | Replies (26)

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@philipbrachko

I wish I had the Decipher test done in the beginning, it was not offered. So I had the Gleason test (8) Come to find out, at best it is 80% accurate(NCI). Many recent studies have it less than 50% accurate causing more prostatectomies than necessary. I requested before my surgery that a decipher test be done on the tumor. Turns out , after ADT they won't do decipher test. and there wasn't enough tumor left after surgery to test. Should I be suspicious ?

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Replies to "I wish I had the Decipher test done in the beginning, it was not offered. So..."

pianoman, What I am told about Decipher test it is done using the biopsies that were taken. When you got the Gleason test it was done from biopsies was it not? If so a Decipher test could have been done on those biopsies taken. That is how mine was done.

Not enough tumor left. They did my Decipher test from biopsies??

Are you dealing with a urologist or oncologist/radiologist. If you had surgery I expect you were being seen by urologist not oncologist/radiologist. If you are still feeling you need more information I would seek a second opinion of your care. The provider you go to can request (with your permission) can have your medical information sent to them to review including your tests.