Connect
← Return to Anyone here dealing with peripheral neuropathy?
Discussion
Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Thanks for this insight Lori. I will talk to Linda about this when she gets up. From what you say about Central Sensitization (CS) I bet you are right. Linda is sensitive to EVERYTHING. And she startles very very easily. There was a show about ten years ago in which the British comedienne Catherine Tate plays a woman who reminds me of Linda. If her husband lightly placed his pipe on the side table she would jump out of her chair and shriek "Ahhhh!!!!! What was THAT!!?" Linda's not usually that bad but we both watched her play that character and shared a knowing laugh over it. And sensitivity to chemicals? Oh my gosh, so so sensitive. Can you imagine what chemo is like to someone like that? It put her into another world, and a hellish one. One thing about Linda as well as you and many others that I notice is that so often do people with PN have many different things going ka-flooie in their bodies. In Linda's case she also has severe debilitating tinnitus, SAD (seasonal affective disorder), sinus issues, and extremely severe itch from fibromyalgia which feels like its deep inside where you can't scratch. She has other things as well and I can't always remember them all. But she always said she could deal with everything else if she could just get rid of the pain in her feet and lower legs. Anyway, thanks again Lori.
Replies to "Thanks for this insight Lori. I will talk to Linda about this when she gets up...."
@jesfactsmon Hi Hank, Linda sounds like the poster child for Central Sensitization. Her extreme chemical sensitivities, startling so easily, and MOSTLY....FIBROBYALGIA. That illness is almost like the cornerstone of central sensitization. I have a long history of fibromyalgia as well, but over the last 10 years or so, it is very mild. There was a time that I was very sensitive to almost all meds, too. However, it has settled down with age. I have read that people with a history of fibromyalgia often get neuropathy. The problem, however, is that nerve pain does not respond all that well to things people do when their pain is from Central Sensitization. So many techniques, without effectiveness. Anyway, we all keep searching to feel better. Be safe, Hank. Lori
Connect
@jesfactsmon Hi Hank, The more you describe, I can tell you that Linda is like the poster child for Central Sensitivity. Fibromyalgia is a major central sensitization pain problem, and the startling, extreme med sensitivities, are all part of the Central Sensitivity problem. The terrible thing is that nerve pain does not respond very well with techniques used in central sensitivity type pain. I have tried, and my pain is so constant, that I would literally have to try retraining my brain to not feel pain, all day long. Techniques, along with regular exercise, good diet, etc., are things like telling yourself that you are well, and don't need pain signals. You tell yourself, over and over, till the pain leaves. Another...picturing the painful area as something wonderful to you...in my case, radiant sunshine. Singing away the pain is another one. Just sing whole heartedly. I actually love to sing, and this distracts, and may even break the pain cycle sometimes. Let's face it, Hank. Nerve pain is very alien, and hard to handle. I fall back on Kratom, CBD, and marijuana. Praying for my DRG trial. My heart breaks for Linda. My heart breaks for everyone in constant pain. Be safe, Hank Lori