Thank you so very much for sharing. I know it isn’t easy to talk with complete strangers about this disease. I feel very blessed to be in an area with a top notch Cancer center and to have a doctor who is a specialist. My Pagets is invasive and I was onboard with the surgeon to remove all that was present, including sentinel lymph nodes in both sides of my groin. The surgery is not easy, but he was able to get clear margins with no skin grafts.
I have a post op appointment tomorrow (I might be able to have the drains removed!).
I do have someone to help me at home; preparing meals, cleaning, so that is a huge help to me. I commend you for being able to take care of yourself alone. I know that is tough.
Thank you again for your input! I hope you can find some relief from the pain soon.