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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 5 days ago | Replies (2916)

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@lorirenee1

@jesfactsmon Hi Hank, I have read so much about Central Sensitization and with all of Linda's allergies/med intolerances, I would imagine she does have Central Sensitization. One of the characteristics of this disorder is an intolerance to chemicals. There can also be intolerances to loud sound, too much light.... just thought I would give you this info. I am pretty sure I have it, too. Not easy. Lori

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Replies to "@jesfactsmon Hi Hank, I have read so much about Central Sensitization and with all of Linda's..."

@lorirenee1 I will second that possibility for Linda. Great call. I'm a migraine sufferer but even without one, I am intolerant to smell, light, noise, chaos...been like this for quite a while now and it has increased since my neuropathy. My body is oversensitive to the littlest things like bumping my hand or a tiny cut, etc..
Conflicting, between my eye disease, chronic migraine and neuropathy. Too much trauma, too much stress, too much pain. It scientifically makes sense.
Lori, have you watched Dr. Slettons video? I first saw it in February and a lightbulb went off. I sat watching it with my husband and our jaws both dropped. I had no idea this diagnosis existed but, it sure made sense for me, finally.

Wishing you a pleasant day. 🌻
Rachel

Also Lori, I think you might get a lot out of this book. It dives deep into Central Sensitization theories and how to re-train your pain pathways. I found it fascinating. It opened my thoughts up on helpful ways to navigate around chronic pain. Let me know your thoughts, if you ever read it.

Thanks for this insight Lori. I will talk to Linda about this when she gets up. From what you say about Central Sensitization (CS) I bet you are right. Linda is sensitive to EVERYTHING. And she startles very very easily. There was a show about ten years ago in which the British comedienne Catherine Tate plays a woman who reminds me of Linda. If her husband lightly placed his pipe on the side table she would jump out of her chair and shriek "Ahhhh!!!!! What was THAT!!?" Linda's not usually that bad but we both watched her play that character and shared a knowing laugh over it. And sensitivity to chemicals? Oh my gosh, so so sensitive. Can you imagine what chemo is like to someone like that? It put her into another world, and a hellish one. One thing about Linda as well as you and many others that I notice is that so often do people with PN have many different things going ka-flooie in their bodies. In Linda's case she also has severe debilitating tinnitus, SAD (seasonal affective disorder), sinus issues, and extremely severe itch from fibromyalgia which feels like its deep inside where you can't scratch. She has other things as well and I can't always remember them all. But she always said she could deal with everything else if she could just get rid of the pain in her feet and lower legs. Anyway, thanks again Lori.