Hi,
I have been living with syringomyelia for over 30 years now, I have 2 shunts, one is in the cervical area and the other is in the thoracic area. and recently, I'd say over the last 2 years, I've experienced a couple of new symptoms I believe are related to the syringomyelia.
My left leg started twisting to the point my left foot is pointing more to the right than straight ahead, my left knee rubs against my right knee, and now I have sores on my left knee.
And the last symptom is, when I have to urinate my left leg starts jumping, and my left foot causes me quite a bit of pain, but as soon as I urinate, my left foot stops hurting and my left leg stops jumping.
I have an appointment for the second week of October at the Mayo clinic in Rochester, I have a feeling the thoracic shunt has clogged, and I may have another syrinx growing in the lumbar area of my spine.
Please keep me in your prayers, I just turned 59 at the end of July, and I'd like to get a few more useful years in before my time is up.
Thank you for your time.
Jeffrey/Woundedbear.