← Return to Diagnosed with Stage 4 pNET: What should I know?

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@retiredinkazoo

Thanks for the prompt reply kim1965. I appreciate the additional information and will definitely discuss with my care team the possible use of CAP/TEM. I still did not understand what the term meant and interestingly the NIH Dictionary of Cancer Terms showed "no result" for "CAP/TEM." But with a bit more searching I now understand this is short for "capecitabine and temozolomide" and I was able to find a clinical study applying this therapy with good results to patients with NETs that had metastasized to the liver. Can you tell me, what does the term "Mtn. Function" mean? As you can tell I'm still not familiar with all the terminology related to NETs. Thanks again for your help!
Tom

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Replies to "Thanks for the prompt reply kim1965. I appreciate the additional information and will definitely discuss with..."

Absolutely, I apologize for not explaining it better. At our initial diagnosis of NETwe we’re terrified that she had cancer and might die. Our oncologist quickly calm us down, referred us to a great team at Froedert hospital. The best day for us is when the main surgeon was very confident that after chemo and surgery we would be able to kick this cancer down the road by decades, and it only be a maintenance item, needing to do whatever is the best choice to continue to keep it at a very low concentration, only in her liver presently. Very few patients get rid of NET’s but many are living a good life being able to do what they want and this forum will share many of those stories. I hope this answers your question. Please let us know what other questions you may have.