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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Replies to "I haven't read much about it, but from the little that I did this is what..."
Hi, I'm new to the group. I suffer from idopathic peripheral neuropathy so I'm very interested in what works for others that I could try. However, I'm frustrated in my quest because so many of the participants use shortcuts to identify different therapies or medicines they use. I have no idea what DRG, SCS and all the other abreviations mean. I realize that many of you have been on this site for some time and I'm sorry for the pain you're experiencing. If you could, the first time you mention one of these items please spell out what the letters stand for then in () add the abreviation after the words. Then to your heart's content go ahead and use the abreviations.
Thanks
James
@jesfactsmon @johnbishop Hi guys! John, I have to thank you so much for posting the DRG studies you found. I will read them all, and have read a bit already. You are a pro at finding information!!! Hank, I will post as soon as I get a trial done. So far, I have called and emailed my pain doc about 3 days ago, but have not heard from him to reschedule yet. I know that in Illinois, all elective procedures begin on May 12th. I read that patients are prioritized as far as who gets procedures done first. I know there are people with really serious things that have been delayed, so I don't know when I will be scheduled. When I am scheduled, I will post that I am. It is just not soon enough. I feel like a human pain machine, with such aberrant, abnormal foot sensations that it is utterly freaky. I would describe, but it is actually rather disgusting. EWWWWW!!!!! Anyway, I cannot do it soon enough. My husband is so funny. I live on Marijuana and Kratom, and now he is pushing alcohol. He says that maybe if I get drunk enough, I won't feel a thing. I may have a few glasses of wine tonite, but I am not a drinker, so I don't know if I can get the stuff down. I also don't want to like alcohol, as it is not a good thing to drink. So far, the Kratom works best for helping pain, and not making me stoned. Last night, while watching Breaking Bad, a great series for binge watching, I was taking bits of Marijuana Gummies as I watched. Whoa, with a 45 minute delay before they work, I thought I went to the moon with how I felt once a Gummy kicked in. I can't believe I ever enjoyed the stuff. But it beats pain. I also was able to still concentrate on TV, which is good. Anyway, I am rambling, probably cause I have marijuana in me as I am writing. What a life!!!! And now, we can't even hug anybody. Big gip! Anyway, be safe and as well as you can be. I will post once my trial is planned, and probably sooner! Lori