Connect
← Return to Anyone here dealing with peripheral neuropathy?
Discussion
Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
@jimhd Hi, Jim. I certainly hope you get some help that works, before you opt for the DRG trial. I exhausted everything I know of. At this point, I just want to feel better. I don't have to tell you how excruciating this neuropathy is. I wanted to take a walk today, and I must of tried on easily a dozen pair of shoes, when I finally decided not to walk. They all felt like walking on gravel. I live on marijuana, and hate the feel of it. Kratom is way better, but I cannot take it every day. Meanwhile, pain like hell. Anyway, keep me posted, and I will post, when I find out when I will get my trial. Illinois opens up for elective surgery May 12th, and I am sure the docs are busy making sure they are following virus protocols and prioritizing patients. God knows when I will actually be scheduled. Too much. My best to you. Lori
Replies to "@jimhd Hi, Jim. I certainly hope you get some help that works, before you opt for..."
Connect
Lori, my wife and I are also interested in how this goes for you. I had not heard of it before but still get immediately excited whenever I find out about any new possible PN solution. Maybe this DRG procedure will provide us all some new hope, based on your results. Tonight Linda's pain level was through the roof for 3 full hours before bedtime. She went to bed and went right to sleep thank god (I rubbed her feet as she was drifting off -this has been helpful to her lately). I started looking through some old links to websites related to PN research and noticed one about FLT3 that I did not remember. Apparently there is a company, Biodol, that is trying to develop a pain treatment with it. If anyone knows anything regarding it I'd love to hear about it. Anyway, hope you get scheduled soon Lori.