I am not sure where you are located but it took 12 years to diagnose my CIDP. The important parts about this are the "demyelinating" and "polyneurophy", aspects which match my issues. So, just as an FYI because I have no background, but I have been receiving infusions every three weeks using Privigin, (immunoglobulin). I have had a couple of reactions but I am feeling much better. Perhaps you could at least ask your docs about this. ?