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Ways to control hypoglycemia caused by insulinoma in pancreas?
Neuroendocrine Tumors (NETs) | Last Active: Jan 5 6:02am | Replies (42)Comment receiving replies
Diazoxide, commonly known as proglycem has been a life saver. It controls my blood sugars. Dosages may have to increase as your condition changes. But it works so well, I can sleep through night, walk during day. Before if I laid flat at night my blood sugar would go from 120 to 30 in 30 minutes to hour. Try it. I take 1.25ml 3 times a day. I could probably take less. But it is wonderful to not have to constantly be looking at my libre 3 worrying.
Replies to "Diazoxide, commonly known as proglycem has been a life saver. It controls my blood sugars. Dosages..."
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I would also recommend you have both types of petscans done. It took 5 years to get diagnosed. By that time I had tumors in pancreas and liver. Neuroendocrine tumors come back and spread without constant monitoring and care. Mine began with bowel obstructions, 6 in 5 year period. Since diagnosed I had Whipple, helped for 2 months and blood sugar issues returned with a vengeance. Poor treatment and understanding made me switch hospital networks. Neuroendocrine tumors are not common, even most oncologist and endocrinologist are not real experienced with them. Problem is every Neuroendocrine tumor patient is different, from there problems to what helps, to how fast progression happens. I'm currently stage 4, liver lesions have grown,and even spread to my l5 vertebrae. I'm currently doing lutathera treatments. I wish you the best.