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@beth71

The hardest part was finding a facility (in the south) and an Interventional Radiologist who performs enough cases to remain competent in the procedure. The next most challenging aspect was the NPO status. I was allowed to have Clear liquids up to 2 hrs. prior to arrival for blood glucose rescue if needed. Labs drawn and Iv started prior to case. Once in Procedure Room, I was sedated, IV conscious sedation so no intubation. They accessed my Right Femoral vein and artery (Right groin area). Imaging was then used to get to the vessels that perfuse the pancreas. At each artery, they injected Calcium and then true multiple timed blood draws on he venous side looking for increasing trends in Insulin levels. When they injected the calcium, I could feel it going through my upper abdomen, It was a weird sensation. During the procedure, LOTS of blood samples are taken in the range of 70-80. Once completed, an Angio-seal with dressing was used and had to lie flat for 2 hrs. before discharge. Once we got back to the hotel, I went straight to the bathroom to find that I was bleeding from the site with a saturated dressing. I immediately grabbed a washcloth and applied pressure and we immediately went to the ED. Thankfully it was my venous access that was oozing, but had pretty much resolved upon arrival to ED. The Int Rad Team came to evaluate me and re-dress my site and we went back to hotel. That was the only hiccup I encountered. I am on high dose steroids daily so my bruising in the area was significant, but no adverse complications. Some of the labs drawn for test analysis were send-outs so waiting almost 3 weeks for the results was a bit challenging. Best wishes for a successful procedure, answers and a reasonable plan of care.

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Replies to "The hardest part was finding a facility (in the south) and an Interventional Radiologist who performs..."

Diazoxide, commonly known as proglycem has been a life saver. It controls my blood sugars. Dosages may have to increase as your condition changes. But it works so well, I can sleep through night, walk during day. Before if I laid flat at night my blood sugar would go from 120 to 30 in 30 minutes to hour. Try it. I take 1.25ml 3 times a day. I could probably take less. But it is wonderful to not have to constantly be looking at my libre 3 worrying.

Thank you so much for the detailed response. I don’t think I would be able to remember all the details. I don’t know who my interventional radiologist will be. The surgeon I was referred to is sending me to him as he is trying to determine if I may have NIPHS requiring surgery or if I might be able to take my tumor out via radio frequency ablation. Where did you go to for this procedure. After reading your experience, I am concerned about the radiologist’s experience. Don’t know who it will be yet. I live in San Antonio, TX.

Beth where did you go for the procedure and who was your radiologist? Thanks so much.