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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: 11 hours ago | Replies (2916)

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@rwinney

@jesfactsmon Dear Hank, I have witnessed my husband's frustrations over my pain and dysfunctional state. Although he is not a researcher like yourself (highly commendable by the way), he does care deeply. Hey, my life directly effects his life, my inabilities curb his abilities. He's held up tough for me but wants to take it all away, for me, for us. I do not have any solid answer for you or your wife but, will say this...it took me 4 years to come to my current conclusion of there is no magic pill, there us no magic procedure or potion, there is no cure at this time. All I'm left with when I look in the mirror is - this is me now, noone wants to come to my rescue, so what the hell am i going to do about it??? I cant speak for your wife or her individual pain but, i decided to think out of the box and dig deeper in to my brains neuroplasticity and what changes I can make to undo the current way my body interprets my disease, my pain, my daily existence. I have no idea if I'm up for this type challenge but I've got nothing to lose. While you continue your research for products maybe your wife (if able and willing) would be up for reading Life After Pain by Dr. Jonathan Kuttner. It's based on mind/body as a whole. I try real hard to keep hope alive because I simply dont like living this way. I have no clue if my endurance is there, if I'm fully committed, if I'm completely sold on these theories but, I have to try another approach because the current one ain't doing enough and I want a better life back! I appreciate your care and concern for your wife so much. I'm sure she knows how lucky she is to have you. As a team, you and she can keep hope alive as well and I wish you both all the best in your quest to resolve this upheaval of life. I just got word today (after 2 virtual interviews with Drs) that the Mayo Pain Rehabilitation program is reopening, since Covid shut it down, and I'm getting a call today to FINALLY schedule my appointment and 3 week stay. Hotels in Florida opening today, I'm told. So there I will head with all the hope in the world for a better outcome. If you haven't, please go to Mayo's website and watch Dr. Sletton's video on Pain Central Sensitization and see if it applies to your wife and might bring value to her situation. Good luck sir and keep us posted. All the best, Rachel

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Replies to "@jesfactsmon Dear Hank, I have witnessed my husband's frustrations over my pain and dysfunctional state. Although..."

Thanks Rachel. You may have a knack for saying just the right thing at the right time I think. Maybe it IS time to make a new assessment of my and my wife's approach to her pain situation instead of constantly seeking that Holy Grail answer that we always think might be just over the next ridge. And thanks for the book and video recommendations. Will look into both. I also went back and read your post on Feb. 1st which made an impression on us both at the time. We both found inspiration in your determination to always look for the positives in your situation. I believe there is a deeper meaning to our lives and adversity is definitely helpful in it's pursuit. I also believe that effort is never wasted and the universe does keep things in balance even if we can't see it. Sorry. I sometimes get New Agey, it's the baby boomer in me.

@rwinney I look forward to hearing what pcs does for you.

Jim