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@catz5000

Hi Kitty,

Thanks so much for your reply and so sorry that you are struggling. I hope that you continue to stay strong to fight for the treatment that you deserve. I appreciate hearing about your insight and experience regarding some of the treatments available. We are newbies with this disease and feel somewhat overwhelmed. Any type of remission right now is our main goal. I just recently contacted a naturopath for my daughter to see if she can try some lifestyle and diet changes that might complement her medication treatments. I also suggested that she try intermittent fasting to see if it makes any difference. I know that a lot of this is trial and error. I find that any type of lifestyle or diet advice is very much lacking with our GI doctor as the "go to" is always a new drug - which I understand why they do this but I don't want this to be the only treatment. My daughter is finally off high does of prednisone so at least that is a relief for now. It was nice connecting with you Kitty. Nice to know that there are people out there who can relate to what we are going through. Sending healing wishes your way.

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Replies to "Hi Kitty, Thanks so much for your reply and so sorry that you are struggling. I..."

Hi catz5000

Thank you so much for your nice note. I was thinking about trying a naturopath also. You are so right about the go to is always a new drug, which indeed have so many side effects and make you feel so much worse. The doctors just do not get it. Have you tried any support groups in your area? I have found that helpful, except now my zoom audio is not working so I have not been able to join in. I made a decision that I do not want all these harsh drugs anymore, I want to do this more naturally. One doctor said to me there is no holistic cure for this disease. They all know that covid caused alot of us to get this darn disease, They just dont know what to do about it. I am sending healing thoughts and prayers for your daughter and you. This is a tough deal, and like my job coach says this is my new normal. It is nice to know that there are others who get it and can be understanding about this. I would love to hear from you again and hear how your daughter is. Sending virtual hugs. Kitty2