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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)Comment receiving replies
Hi Hank @jesfactsmon, I think we can all relate to your struggle to find something that works for your wife to relieve the pain. I've not heard of Penetrex but it looks like it contains some of the same ingredients of creams and salves that I tried over the years for my PN except I was hoping it would help for numbness which it did not. I don't have pain so am not able offer any validation. The only thing I can say is you really have to research anything you try (which you are doing!) as there are so many companies out there selling snake oil. Here are some links I use for my research:
Quazar's guidance about avoiding scams and snake oil cures
-- https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments/
FDA's Health Fraud Page
-- https://www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/ucm539101.htm
NIH's National Center for Complementary and Integrative Health (NCCIH) which offers guidance about integrative health and how to evaluate it.
-- https://nccih.nih.gov/health/decisions
I recently started a new discussion - Have you tried the new Protocol 525 product for neuropathy relief? to see if others that are using the product can share their experience with it. Here is the link to the discussion: https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/
@rwinney, @jimhd, @artscaping and others may have some suggestions for you also.
Replies to "Hi Hank @jesfactsmon, I think we can all relate to your struggle to find something that..."
By the way John, thank-you for these links. I especially appreciated the post by @quazar who has some good tips on choosing practitioners.
I have been using Penetrex for years. If I can’t sleep because of the burning pain, I rub Penetrex on my legs and hips and wait for about 10 minutes. It reduces the pain level enough so I can get to sleep.
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Actually John, my wife started the FB Protocol about a month ago and I think it was the high dose of R Lipoic Acid (or perhaps it was the hemp oil, who knows?) that set her into a much deeper level of pain than she had ever experienced in 6 years of dealing with this. I had read about "the awakening" that is supposed to explain this additional pain, but she just could not tolerate it and after 5 days she quit (by that last day she was in a panic at her pain level). In the intervening 4 weeks since she is still at a heightened state of pain than before. Bob, the person who seems to be the The Protocol head honcho, tries to shame anyone who decides to quit into staying with it and just having faith, but when faced with such extreme pain all of a sudden it's just not possible. I did all the upfront research, not my wife, and I guess I initially didn't tell her that for a few people the pain gets worse in the beginning (hoping she would not fall into that category) and when it happened she was upset with both the Protocol and me for a while as well. When you invest yourself in something that is touted to be "the answer" you are just not expecting to get MUCH worse right away. So that is number 73 on my list of Tales of Woe regarding all the potential cures we have tried out and discarded, as reflected by my Amazon order history. But John, I know from the FB group that some people have benefitted from The Protocol so I am not knocking it, just saying it did not work for us. Thanks, Hank