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@jerrysgirl3

I was taking hydroxychloroquine for lupus in June. Was having hand swelling issues when I first saw doc but RA did not show up. Went off hydroxy 3 weeks later. Couldn't handle it. Got sick. Kidney issues. Doc immediately took me off. Not quite sure why I was on it when my symptoms were manageable. Now I suffer from low blood sodium, which almost killed me, major hair loss, knees hurting, constipation, depression. Almost as if the meds started the lupus wheel turning. Seeing lupus doc on Thursday. Not sure what he's going to do. I can handle Medrol steroid but currently waiting for a petscan today and didn't want to be on it. I also have chronic leukemia. Never sure which disease or which Med is causing my issues as I'm very sensitive to drugs and the side effects are very similar. Docs not very helpful. Don't know what I'm going to do. Not enjoying life at all. Meeting virtually with new therapist tomorrow morning. 🤞🏻🤞🏻 I hope he works out.

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Replies to "I was taking hydroxychloroquine for lupus in June. Was having hand swelling issues when I first..."

I’ve been on hydroxy for 15 years and never had N issue with it. I was also on methotrexate for 5 years with o issue except thinning hair. I was diagnosed with PMR 6 months ago and was on Medrol. Now off and in the middle of. a flare. There’s no magic pill for these illnesses.