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Epilepsy/Seizures after Covid

Epilepsy & Seizures | Last Active: Jun 7 3:49am | Replies (20)

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@santosha

@earlylonghauler, Good Morning!
Thank you so much for sharing your experience and this article with us. Here we learn so much with one another.
I am very sorry you got epilepsy through Covid. How have you been dealing with it? I understand your seizures are now controlled through medication, correct? I hope you have been adapting well to the medication. What kind of epilepsy did you get through this terrible experience?
Feel free to ask your questions here at the group, as we might be able to help through our own experiences.
My blessings to you!
Chris (Santosha)

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Replies to "@earlylonghauler, Good Morning! Thank you so much for sharing your experience and this article with us...."

Hi Chris,

I am coming up on the 1 year anniversary of the Tonic Clonic in 2013 that got me diagnosed with Epilepsy. I had been calling it my "first" seizure, but the neurologist believes my first seizure was the relatively mild one back in 2020, when I believe I was infected with Covid and woke up with Amnesia. I recently had a sleep study done recently and they determined my seizures originate in the right temporal lobe. Medication is not yet fully controlling my seizures. Initially I was on Keppra, and it did a good job of controlling seizures for about 3 months, but I asked to be taken off of it because gave me "Keppra rage". My neurologist switched me to Vimpat, which is much better for mood, but unfortunately it does not control my seizures as well as Keppra. I seem to have a seizure at least every other month or so on Vimpat, so a year after diagnosis I still cannot drive. Vimpat affects me physically more than Keppra did - Vimpat makes me a bit wobbly on my feet, and clumsy in general. I have possibly fractured my thumb, and damaged the nail matrix, simply by putting things away on a shelf, misjudging where the shelf is, and whacking my thumb against it full force. The damaged thumb makes the nail grown in bumpy. Next week I see a hand specialist to see if they can repair the thumb and nail matrix. So I really don't want to increase Vimpat dose for fear it will make me even clumsier and more prone to injuring myself through activities of daily living. I'd rather go back to Keppra if it does a better job of controlling seizures, and just deal with the mood issues, but my neurologist seems to want to stick with Vimpat and increase dose if necessary. I don't know if I should stick to my position and ask to be put back on Keppra, or just go with whatever the doc recommends and increase Vimpat. Decisions no one wants to make, but have to be made.