Good Morning Lori:
I have had some differing results with the different Kratom I have used. Actually only 2 types.
Bali Red and Maeng Da Standard. Bali Red seemed to work well for about 10 days - relieving pain at night and then pretty much stopped working. Maeng Da Standard actually makes me sleep well, but does not quite relieve the pain.
I also have Bali Select Green but yet to use. I buy at KratomCaps.com.
What type and how much do you use? And where do buy yours.
Hope you have a great day.
Thanks Mike
@mstrasse1 Hi, Mike. I only buy from Ethanaturals . I buy the pills, not the powder, and buy the pills recommended for body discomfort/pain. I don't know if you know it, but you are supposed to rotate the kinds of capsules or pills you take. Never keep taking the same type, or they do stop working. Etha seems to really take pain away without side effects. I take about two and a half grams per dosage, which is equivalent to 9 pills. That is the amount which seems to work for me, but everyone is different. Find the least amount of pills that you can take, and still have the pain vanish. Best of luck. Lori
@lorirenee1 I bought the WIse men balm and am using it about 2 weeks now I do like it using it like it says I went off of it and my old symptoms came back .. I am a advocate of Essential Oils . I have a diffuser and found that Clove oil and some others in a diffuser are good for cold virus and others. My neuropathy is in my thighs from nerves in my back when I haven't used it which is now I hurt so am going to apply some now . Thanks for the post on it . Have a good blessed day Stay safe
@lorirenee1 I bought the WIse men balm and am using it about 2 weeks now I do like it using it like it says I went off of it and my old symptoms came back .. I am a advocate of Essential Oils . I have a diffuser and found that Clove oil and some others in a diffuser are good for cold virus and others. My neuropathy is in my thighs from nerves in my back when I haven't used it which is now I hurt so am going to apply some now . Thanks for the post on it . Have a good blessed day Stay safe
@lioness I am so glad the Wisemen product is helping you. I have to apply it very thick, but it does help the intense burning. You have a blessed day, as well. Stay safe! Lori
After several years of intermittent PN in my feet recently it moved to my lower legs and then to my hands and arms. Now I can go to bed and fall asleep feeling no symptoms, then I wake up after being asleep 3 or 4 hours and the pain will have come back. Usually after going to the bathroom I am able to go back to sleep, but sometimes the pain is too distracting and I have to get up. The pain gradually begins to subside, hands first, then after one or two hours it pretty well goes away and I can get through the rest of my day practically pain free. Then I go to bed at 10 PM and the cycle repeats. Mayo Clinic called it idiopathic and progressive. Does anyone else experience this type of PN?
Hello @catro How troubling this disease is and unpredictable with each persons experience being so unique. I'm sorry you have progressive neuropathy. I do as well and yes, I experience all of your pain areas but, not in such a distinct pain pattern as yours. I have polyneuropathy and my findings have been that areas rotate in pain intensity. Flares may be for days in certain body parts then trade off. I have no moments of escaping pain anymore. Earlier on, my nights were filled with pain and I'd be up through the night. I suffer from insomnia as a result. Now, for the most part I sleep through the night (once I get to sleep anyway) with the help of medical marijuana. Have you tried it for your pain? Does heat or ice help you duting your night flares? Do you use any topicals? I'm glad you have moments of being pain free! That's awesome!!! Take care.
Rachel
Yes, catro and Rachel, Neuropathy is progressing capriciously in my body too. It moved up from my toes, into feet, legs, arms and hands. I wonder what's next ... Recently it flared up in my toes again - like a red hot sabre ramming through one toe into my body. My diagnosis was Axonal Sensory Neuropathy. Peggy
I have to change medicines now and then. I too am trying to be pain-free all day and night. Walking around helps. I always feel better in the late afternoon and evening, when I've been walking around all day. Mornings are the hardest. Anyone else? Peggy
Good morning Peggy @pfbacon Yes ma'am mornings and evenings are the hardest for me. I've gone all night without pain medication therefore when I wake up all hell breaks loose. It didnt used to be that way but progression dictates.
@schony1087 I have severe foot neuropathy as well. I don't find anything works all too well for the burning. I put my feet in ice cold water in the bath tub, and that relieves it, but as soon as I take my feet out, it starts again. I use Wisemen, Healing Balm, which is pure frankincense and myrr, which does help the burning, most of the time. I buy it on Amazon for about fifteen bucks or so, maybe a bit more. It does cool off the burning. For pain, such as throbbing, stabbing, I do use Kratom successfully, and marijuana. If you want to know more about Kratom, let me know. This is terrible to live with. Such a curse. Lori Renee 1
@lorirenee1 You mentioned that ice cold water helps your feet. It does mine too. So, I take a pair of cotton athletic socks, soak them in cold water and wear them with my Nike sandals around the house. It instantly helps with the pain. At night, sometimes I wear the wet soaks to bed and let my feet hang over the edge. Not the most clamorous look, but it really helps with the pain. For all day pain, I use strong pain pills and they are wonderful. They make my brain foggy but it is better than the pain.
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@mstrasse1 Hi, Mike. I only buy from Ethanaturals . I buy the pills, not the powder, and buy the pills recommended for body discomfort/pain. I don't know if you know it, but you are supposed to rotate the kinds of capsules or pills you take. Never keep taking the same type, or they do stop working. Etha seems to really take pain away without side effects. I take about two and a half grams per dosage, which is equivalent to 9 pills. That is the amount which seems to work for me, but everyone is different. Find the least amount of pills that you can take, and still have the pain vanish. Best of luck. Lori
@lorirenee1 I bought the WIse men balm and am using it about 2 weeks now I do like it using it like it says I went off of it and my old symptoms came back .. I am a advocate of Essential Oils . I have a diffuser and found that Clove oil and some others in a diffuser are good for cold virus and others. My neuropathy is in my thighs from nerves in my back when I haven't used it which is now I hurt so am going to apply some now . Thanks for the post on it . Have a good blessed day Stay safe
@lioness I am so glad the Wisemen product is helping you. I have to apply it very thick, but it does help the intense burning. You have a blessed day, as well. Stay safe! Lori
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1 Reaction@lorirenee1 Thanks it is I may have to apply it heavier on my thighs will try this
After several years of intermittent PN in my feet recently it moved to my lower legs and then to my hands and arms. Now I can go to bed and fall asleep feeling no symptoms, then I wake up after being asleep 3 or 4 hours and the pain will have come back. Usually after going to the bathroom I am able to go back to sleep, but sometimes the pain is too distracting and I have to get up. The pain gradually begins to subside, hands first, then after one or two hours it pretty well goes away and I can get through the rest of my day practically pain free. Then I go to bed at 10 PM and the cycle repeats. Mayo Clinic called it idiopathic and progressive. Does anyone else experience this type of PN?
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Like -
Helpful -
Hug
2 ReactionsHello @catro How troubling this disease is and unpredictable with each persons experience being so unique. I'm sorry you have progressive neuropathy. I do as well and yes, I experience all of your pain areas but, not in such a distinct pain pattern as yours. I have polyneuropathy and my findings have been that areas rotate in pain intensity. Flares may be for days in certain body parts then trade off. I have no moments of escaping pain anymore. Earlier on, my nights were filled with pain and I'd be up through the night. I suffer from insomnia as a result. Now, for the most part I sleep through the night (once I get to sleep anyway) with the help of medical marijuana. Have you tried it for your pain? Does heat or ice help you duting your night flares? Do you use any topicals? I'm glad you have moments of being pain free! That's awesome!!! Take care.
Rachel
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Like -
Helpful -
Hug
1 ReactionYes, catro and Rachel, Neuropathy is progressing capriciously in my body too. It moved up from my toes, into feet, legs, arms and hands. I wonder what's next ... Recently it flared up in my toes again - like a red hot sabre ramming through one toe into my body. My diagnosis was Axonal Sensory Neuropathy. Peggy
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Like -
Helpful -
Hug
1 ReactionI have to change medicines now and then. I too am trying to be pain-free all day and night. Walking around helps. I always feel better in the late afternoon and evening, when I've been walking around all day. Mornings are the hardest. Anyone else? Peggy
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Like -
Helpful -
Hug
2 ReactionsGood morning Peggy @pfbacon Yes ma'am mornings and evenings are the hardest for me. I've gone all night without pain medication therefore when I wake up all hell breaks loose. It didnt used to be that way but progression dictates.
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Like -
Helpful -
Hug
2 Reactions@lorirenee1 You mentioned that ice cold water helps your feet. It does mine too. So, I take a pair of cotton athletic socks, soak them in cold water and wear them with my Nike sandals around the house. It instantly helps with the pain. At night, sometimes I wear the wet soaks to bed and let my feet hang over the edge. Not the most clamorous look, but it really helps with the pain. For all day pain, I use strong pain pills and they are wonderful. They make my brain foggy but it is better than the pain.