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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)
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@lori70

I’m newly diagnosed with severe idiopathic PN. So far it’s primarily the numbness in feet and a weird “buzzing” feeling in the feet and calf, and a bit of weakness in standing but I’m walking as much as possible to keep physical right now. Buzzing feeling freaks me out as my dr said that’s not typical with PN, but it sounds like some here do have those types of pins/needles buzzy feeling, which is actually reassuring. (Also just started having periodic facial tingles but this may be anxiety that’s roaring in.). I’m hoping to get my Moderna Covid jab soon, so one less thing to worry about there.

I’ll be reading past posts to catch up, but want to say thanks - I appreciate having a community out there.

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Replies to "I’m newly diagnosed with severe idiopathic PN. So far it’s primarily the numbness in feet and..."
Chris Trout, Volunteer Mentor | @artscaping | Sep 19, 2023

Good evening @lori70. Welcome to the Connect community. We believe in sharing and it looks like are right on target with your first post. I don't know just what "severe" might mean in your case. Is that greater intensity of the numbness or is it the "buzzing" feeling that makes your condition more challenging? Buzzing is used to indicate a sound. Yet you are using it to describe some unusual and perhaps frightening feeling.

I guess I have the "buzzing" feeling also. Some days it is "subdued" and other days it is "scary". Have you ever checked the Barometric Pressure in the weather report? When it goes below 30, then the "buzzing" feeling becomes more pronounced. If it gets to 27 or 28 that's when the pain seems to become severe as well. I always know when the barometric pressure is trending down as the SFN (small fiber neuropathy) becomes more annoying. Sometimes I can go for a walk to release it. Other times I get comfort from a dose of medical cannabis. The real joy is to wake up with no "alerts" in the morning. I will bet you the BP is moving up over 30.

I am glad you are enjoying our online community. We hope you remain active as you encounter others with similar issues.

What kind of exercises do you do? Any stretch yoga? Have you ever done "legs up the wall"? That is a stretch yoga pose that is very helpful to get those legs moving without discomfort in the morning.

May you be safe, protected, and free from inner and outer harm.
Chris

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