Initial blood tests to ask for ?

Posted by alexxa @alexxa, Sep 16, 2023

Hello...
I just had a dexa indicating osteoporosis, and will discuss soon with my PCP. I had a CBC done earlier this summer. I have seen CTX as an important test. I am wondering if I should ask for that on my discussion visit, or anything else, for that matter. Endo initial visit is not for a few months.

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Am I the only one who considers it weird that we have to know what tests are needed and ask for them? Isn't that the responsibility of the medical professionals?

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@normahorn

Am I the only one who considers it weird that we have to know what tests are needed and ask for them? Isn't that the responsibility of the medical professionals?

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@normahorn many endos don't do the CTX or P1NP. That is why I mentioned those first! The other tests we have all mentioned are pretty standard, as you say!

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@windyshores

CTX and P1NP. Vitamin D and calcium. Albumin.

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Can you explain more what CTX and P1NP tests are? Also what we should do if they are not in the correct range?

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P1NP for bone formation/osteoblast activity

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@gretch19

P1NP for bone formation/osteoblast activity

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And parathyroid blood test ...I forgot the abbreviation for that but Dr will know....

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@alexxa

And parathyroid blood test ...I forgot the abbreviation for that but Dr will know....

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PTH

and sometimes CTX is more important than P1NP, for instance on bisphosphonates

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@windyshores

PTH

and sometimes CTX is more important than P1NP, for instance on bisphosphonates

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Thx windyshores - actually it was easily accessible via Google search which led me also to some articles on the subject.
I was thinking of CTX as a baseline - I'm not on any meds at all.
Overall it is going to take me a while to just get familiar with all the various terms and what's important to look at.

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@alexxa

Thx windyshores - actually it was easily accessible via Google search which led me also to some articles on the subject.
I was thinking of CTX as a baseline - I'm not on any meds at all.
Overall it is going to take me a while to just get familiar with all the various terms and what's important to look at.

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Yes baseline is important and should be fasting and done at the same early morning time ( 7-9 is good), according to Dr. McCormick.

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Question about the CTX and P1NP tests: I asked my MD to order these and he did. I have looked into whether Medicare and my secondary (Anthem) covers them and have found conflicting information. Does anyone know for sure? Do the tests have to be coded in a specific way in order for them to be considered necessary?

Thanks.

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Hi Everyone,

I asked my endocrinologist to please order the CTX and P1NP blood tests to get a baseline before starting Forteo (which he did). Soon thereafter, I read on this site (love this site) that the tests aren't always covered by Medicare. I called Medicare and they said they will be covered if the MD considers them "medically necessary."

I followed up and he wrote back:
"I generally don't order these tests because I don't think they generally change how I am treating you. I do think they are reasonable to do however and likely would be covered by insurance. The question is, will the results change our management? I don't think so, which is why I don't usually order them." (Isn't the whole point of the tests to be able to gauge the success and make changes if the meds aren't working, but I digress).

I followed up with: "Thank you. Especially for the first year of treatment I want to have a baseline and then a follow up to see how I am doing on the meds. Would you be willing to deem them medically necessary under these circumstances?"

He wrote back: "I can and have ordered these tests but it's not up to me if they are covered by your insurance."

Anyway, would you take your chances? I don't know how much the tests cost but I'm already going to be paying $1920 per month for the Forteo so anything sounds hard, but I do want the baseline. All input and suggestions welcome.

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