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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)

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@schony1087

Yes, I have neuropathy. I have Excruciating pain in the feet and ankles and often in my legs. The burning is unbearable at times/ I have not found any kind of relief. I have tried gabapentin which didn't help one bit. I had back surgery 7 years ago and I have had this burning since then. I have been to many doctors, out of state and in-state, with no success. Any suggestions will be greatly appreciated.

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Replies to "Yes, I have neuropathy. I have Excruciating pain in the feet and ankles and often in..."

Hi @schony1087 sorry to hear that you are suffering with PN. My wife has constant burning in both feet and intermittent sever itch deep in her feet as well, both since chemo in 2014. It seems like for most people there is no miracle cure generally for PN. My wife copes by having a fan both day and night blowing on her feet. Some nights she soaks her feet in very hot water just before turning in which helps her tolerate the pain enough to get to sleep on particularly bad nights. She does have days occasionally when her pain level is lower and she can consequently do a few things without having to constantly be dealing with pain. I'd say she has about equal number of bad pain days and okay days, with an occasional good day (low pain level) thrown in. She had a similar experience, unacceptable side effects, with gabapentin and got off it after about a month on it with zero benefit from taking it. She has tried kratom for pain with no success so far, although others in this forum (like @lorirenee1 ) have used it with better luck. My wife gets relief from marijuana which she only uses when she needs a break badly. She keeps it as her ace-in-the-hole but uses it judiciously as she finds its effects diminish if she uses it too much. She does not use any other drugs and from what I gather from other people opioids are usually not much help either for neuropathy. What have you found out about dealing with your pain? Have you found anything that helps you to cope? My wife is fortunate in that she does not have to work and can just focus on dealing with the pain when she needs to. Not a fun pursuit but at least she can take that time as needed, when it is needed. I feel so badly, I search the internet a lot for some answers but find no definitive solutions, but remain hopeful that we might stumble on something eventually. Giving up is not an option.

Same as you’ stimulator only thing that works

@schony1087 I have severe foot neuropathy as well. I don't find anything works all too well for the burning. I put my feet in ice cold water in the bath tub, and that relieves it, but as soon as I take my feet out, it starts again. I use Wisemen, Healing Balm, which is pure frankincense and myrr, which does help the burning, most of the time. I buy it on Amazon for about fifteen bucks or so, maybe a bit more. It does cool off the burning. For pain, such as throbbing, stabbing, I do use Kratom successfully, and marijuana. If you want to know more about Kratom, let me know. This is terrible to live with. Such a curse. Lori Renee 1