Hi, I see this has not been replied to in 3 years. Please let me know if there is a new post. I recently got diagnosed with this at age 30 (a Grade 3) and was removed about 3 weeks ago. I had the BRAFV600E mutation and will undergo radiation therapy starting in a week or 2 (to make sure the surgeon removed everything). I know everyone's experiences are different, how were everyone's reaction to the medication? I'm hoping it actually worked for most of you. I'd also like to connect to some of you if that will be easier. Thanks.

Jump to this post