← Return to Any Long Haulers have Ulcerative Colitis from Covid

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@catz5000

I know that this original post is a bit dated but wondering how people are making out with their UC triggered by Covid. I am also convinced that my teenage daughter ended up with UC after two back to back bouts of mild Covid 19 in spring 2022. Very upsetting as she had no prior issues with her GI tract. Struggles daily and has not entered into any sort of remission yet. Tried Pentasa which was awful on her system. Switched to biologic (Humira and biosimilar) and still not doing the trick. Has anyone experienced any healing yet or medications that really addressed the symptoms. I still have a bit of denial going on and hope that perhaps this is still an overshoot of extra inflammation in her body and will slowly go back to normal.

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Replies to "I know that this original post is a bit dated but wondering how people are making..."

Hi catz5000,
I got Covid 12/19/2021 right in the heart of the pandemic. I had Colitis in 2000 and then went into remission without any drugs for about 20 years. The colitis went into full gear and I have been sick with it since then. Unable to get an appointment with a GI physician so it went untreated. The drugs they used were harsh, hospitalized twice, many side effects from Mesalamine products, and Budesonide..horrible stuff which has caused many health problems for me..they wanted me to take an IV Biologic..Entyvio..listen to the side effects that are in the television advertising. No thanks..I have known patients to lose their hair, also a rare brain infection which is fatal and no cure for it. I am not on any meds at this time. It took a long time to withdrawl from Budesonide and I did taper of the drug pretty quick as I had every side effect in the book and it made me more ill than the disease itself. My life has been impacted from all of this , my system is still so inflammed all over my body, even affected my teeth and gums, feet, from head to toe. I never know when my gi tract will rebel, I get so ill with the cramping ect. I too struggle daily and the doctors do not get it. The drugs affected my liver also as my liver tests are high and I dont drink any alcohol. They are blamming it on Tylenol but I know thats not the reason. I now have a chronic cough and it wont go away. I pray that your daughter gets some relief so she can return to a normal life because she is young and does not deserve this. We did not ask for this . As my employment advisor tells me : this is your new way of normal.
Let me know if I can help in any way. Sincerely, Kitty2