← Return to Glimmers of Hope: Post-COVID Syndrome Research

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@anniliz

I have had severe asthma for many years. When I got Covid in October 2022 I became deathly ill and because I had no access to Paxlovid I ended up in bed most of the time pretty much for 4 months . In January 2023 my asthma specialist started me on nebulizer treatments initially 6 times every 24 hours. By May I was down to 2 times a day and for a brief time I was only on my regular inhalers but am now taking 1 nebulizer treatment a day plus my long acting inhaler. But I’m still having trouble with the bad coughing and fatigue. I also experience weird electrical type muscle pain from time to time . I’m so sick and tired of being sick and tired and days I do feel better I have to be super careful not to overdo things or I’m sick again for weeks. I’m in physical therapy to regain strength and balance. I had been benefiting from water exercises several times a week but due to uncontrolled coughing since August 12 have not been able to participate. I’m hoping to get back to that this week if all goes well. Psychologically I struggle a great deal. I have a supportive partner but he really doesn’t get it although he tries…my sense of the future is foreshortened and there have been stretches of time in the past year that I thought I should just get it over with and give up and die. But I’m still here striving to have a life and do meaningful things yet it’s almost a daily battle to stay positive.

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Replies to "I have had severe asthma for many years. When I got Covid in October 2022 I..."

These missives read like my own biography. God I hope something happens soon to give you and all of us relief .

I’m so sorry you’re struggling. I too am struggling, but with no taste or smell for going on 1 year and 4 months! After Covid in December of 2022 I lost my taste and smell. I’ve had 2 Stellate Ganglion Block injections to help me regain it, but only a slight improvement. I’ll be going in this Wednesday for my 3rd. It’s the only thing that is giving me hope. It’s very depressing and I too think about ending it. I also have several food sensitivities and have had 18” of my colon resected in April of 2022, so I don’t eat the way I use to. I keep going, but it really is a constant battle to stay positive as you said. I was not given Paxlovid, but the doctor who didn’t prescribe it for me was not my regular doctor as he was not available. I did ask my Dr recently if he would have prescribed it for me and he said he would have treated me with Paxlovid. So now I’m wondering if I had been treated with Paxlovid, would I have lost my taste and smell for this long of a period. I will never know!🤷‍♀️ I wish you strength to go on and hope you find some relief.

Please try something different - it sounds just like what I was doing..... symptom-wise. Start taking a baby aspirin every night before bed and start 1/2 Nicotine patch every day - see if it helps.....I was about to give up too but am back to my life now....please try.. Bonnie