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When and How to Taper Prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Sep 20, 2023 | Replies (39)

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@tarmansbks

Was on prednisone for 12 years. Took me a year working with an endocrinologist to get off it. We substituted my medrol dose for hydrocortisone tablets in an amount equal to the one medrol pill. Every few months, I took one less pill as long as my blood work showed it was safe to do so.

Finally took my last hydrocortisone tablet last February when my cortisol blood work came back as normal. I think anyone going off long term steroid treatment needs to work with an endocrinologist to make sure you don't go into an adrenal crisis. I had to carry extra pills and a hypodermic in case I had any trauma. Good luck to everyone trying to get off. I will say I felt better on medrol but the risk of diabetes which I avoided but the fact I now have osteoporosis made it essential to get off it. No good deed goes unpunished.

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Replies to "Was on prednisone for 12 years. Took me a year working with an endocrinologist to get..."

Omg, 12years! I have to figure out what to do so that doesn't happen to me. I wonder if the longer you are on steroids, makes it more difficult to come off. That is part of my impatience. I want to taper quick so that it doesn't destroy my body or make me dependent on them. Thanks for your story. Glad you eventually got off before you sustained any more damage. Good point about the endocrinologist. I will keep that in mind. I am hoping there is somebody out there that has a better outcome, like a year, not 12, ugh!