← Return to Corticosteroid injections for polymyalgia rheumatica

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@marilynredder2367

You learned a valuable lesson about steroids. I stayed on them too long with PMR and GCA. Now have steroid myopia. Now reducing quickly with Actemra. Phone and message problems. You may not get this. Do want to talk further. I’m in Florida. Not much guidance here.

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Replies to "You learned a valuable lesson about steroids. I stayed on them too long with PMR and..."

My eyesight changed as soon as I started on pred, went from far sighted to near sighted and developed some cupping around the optic nerve, a warning sign of incipient glaucoma.

"Extreme caution should be exercised with corticosteroid therapy for uveitis in highly myopic eyes. It is well known that high myopia predisposes to glaucoma and visual field loss. These eyes are more susceptible to pressure increase following the administration of corticosteroids, the so-called steroid response. In addition to pressure increase, further myopization can occur due to decreased resistance of the thinned sclera in highly myopic eyes."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3306119/#:~:text=1%2C2%2C3%20These%20eyes,sclera%20in%20highly%20myopic%20eyes.
My prednisone history started when I had my first flare of uveitis 35 years ago. I was given a handful of little white pills by an ophthalmologist who just said the pills would help the inflammation. I have lost count of how many flares of uveitis I have had since my first flare.

Now my eyes have problems caused of prednisone but my vision is still reasonably good. If uveitis doesn't cause blindness it is increasingly likely that prednisone might. It was difficult for me to understand how the medication used to prevent blindness can lead to vision loss.

I'm very grateful to my ophthalmologist who quickly sees me whenever there is a problem with my eyes. When I report that I suspect another flare of uveitis, my ophthalmologist asks me how soon I can come in and be seen.

You feed back is a lot more than I have had in a long time.
I really appreciate it .
My health care group is a crumbling mess.
That said I am also crumbling and no one is putting the pieces to get her. That equates to early death, homelessness, demoralizing be for death. Like I am a degenerate.
I am so tired now, but in the am I will try again, I have an appointment with my Rheumatologist, he is so over worked, he gets confused who I am. 😫 Ugg