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@loribmt

Having Alex out of the hospital is good news! I’m glad that has gone well for him. He’ll feel better having some sense of ‘normalcy’ in having a more homey living arrangement. Obviously I know there’s nothing normal about any of this but he’s getting better and stronger each day. Like I mentioned before, this recovery is long and slow so don’t be discouraged!
The vomiting and nausea is still quite normal and no, I don’t think the lorazapam is the culprit. It is one of the standard anti-nausea meds given to us during transplant. Looking back on my journal, nausea was my friend for the first 2 months thought it started subsided into mostly mornings like your son. So tell him to hang in there! And if the lorazapam allows him to sleep, that’s a good thing. There is a less drowsy anti nausea med that helped me when I no longer required the strength of the Ativan (lorazapam). I switched to sublingual Zofran. Tiny tablets that melt under the tongue in moments. They worked great when I was nauseated without that sedated feeling of the Ativan.

Alex’s body has gone through a lot of trauma. The preconditioning chemo, for lack of a better word, is brutal. So it takes time for the body to recover from that and the transition of the transplant itself. He’s right on track. ☺️

I’m happy to hear he’s eating and keeping things down! Right now calories are important…more so than the nutritional value. But if he can get down good protein and carbs he’s good!
Thank you for sharing his progress. I’d been thinking about him today! And you…how are you holding up?

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Replies to "Having Alex out of the hospital is good news! I’m glad that has gone well for..."

@loribmt
Hi there! Hoping all is well with you and yours.
When you first told me about Voriconazole, I read the literature that you had sent. It was so compelling that I did further research. Convinced that this was the proper way to proceed, I called my son's nurse and had an extensive conversation. I begged her to relay the info to Alex's doctor and she assured me that she would do so. Later that day, the same nurse called me to report that the doctor decided against starting Voriconazole and would continue with Micafungin. I was frustrated and disappointed but held my peace.
Today when I was reviewing my son's med list, I was taken aback: Voriconazole was newly added to the list! He will stop the Micafungin this Sunday before starting Voriconazole on the 24th of this month.
Thanking you greatly for mentioning the article! And KUDOS to you for finding it for me!!!!
Honestly, I am more concerned about him starting Pentamidine on the 24th. There are some nasty side-effects among which is an increase in blood sugars ; his glucose is already out of range high and his father has been insulin-dependent for years. It will bear watching.
Just when I think that I can start to relax about recovery, something new pops up......:(