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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 13 hours ago | Replies (578)Comment receiving replies
Replies to "Having Alex out of the hospital is good news! I’m glad that has gone well for..."
@loribmt
Hi there! Hoping all is well with you and yours.
When you first told me about Voriconazole, I read the literature that you had sent. It was so compelling that I did further research. Convinced that this was the proper way to proceed, I called my son's nurse and had an extensive conversation. I begged her to relay the info to Alex's doctor and she assured me that she would do so. Later that day, the same nurse called me to report that the doctor decided against starting Voriconazole and would continue with Micafungin. I was frustrated and disappointed but held my peace.
Today when I was reviewing my son's med list, I was taken aback: Voriconazole was newly added to the list! He will stop the Micafungin this Sunday before starting Voriconazole on the 24th of this month.
Thanking you greatly for mentioning the article! And KUDOS to you for finding it for me!!!!
Honestly, I am more concerned about him starting Pentamidine on the 24th. There are some nasty side-effects among which is an increase in blood sugars ; his glucose is already out of range high and his father has been insulin-dependent for years. It will bear watching.
Just when I think that I can start to relax about recovery, something new pops up......:(