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DiscussionMy Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 13 hours ago | Replies (578)Comment receiving replies
Replies to "@loribmt My son Alex has finally landed at the Hope Lodge where he was initially scheduled..."
Having Alex out of the hospital is good news! I’m glad that has gone well for him. He’ll feel better having some sense of ‘normalcy’ in having a more homey living arrangement. Obviously I know there’s nothing normal about any of this but he’s getting better and stronger each day. Like I mentioned before, this recovery is long and slow so don’t be discouraged!
The vomiting and nausea is still quite normal and no, I don’t think the lorazapam is the culprit. It is one of the standard anti-nausea meds given to us during transplant. Looking back on my journal, nausea was my friend for the first 2 months thought it started subsided into mostly mornings like your son. So tell him to hang in there! And if the lorazapam allows him to sleep, that’s a good thing. There is a less drowsy anti nausea med that helped me when I no longer required the strength of the Ativan (lorazapam). I switched to sublingual Zofran. Tiny tablets that melt under the tongue in moments. They worked great when I was nauseated without that sedated feeling of the Ativan.
Alex’s body has gone through a lot of trauma. The preconditioning chemo, for lack of a better word, is brutal. So it takes time for the body to recover from that and the transition of the transplant itself. He’s right on track. ☺️
I’m happy to hear he’s eating and keeping things down! Right now calories are important…more so than the nutritional value. But if he can get down good protein and carbs he’s good!
Thank you for sharing his progress. I’d been thinking about him today! And you…how are you holding up?