← Return to Think I have Giant Cell Arteritis (or GCA)

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@marcia115

dbyrne, they think I have Giant Cell Arteritis, I had a tooth pulled in June and
I had a headache every day for a month, and they put me on prednisone, starting at 40 mg for
two weeks. It took the headache away, but they took me off too fast and the headache returned,
now I am back on it going off very slowly. I have to have an ultrasound on my left temple, an MRI on my brain, then a biopsy, and then they will know if I have it, How do they know for sure you have
this? and all of you that are reading this, how do you know for sure this is what you have?
marcia115

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Replies to "dbyrne, they think I have Giant Cell Arteritis, I had a tooth pulled in June and..."

Dear Marcia115: I started with headaches, fatigue, weight loss & jaw pain. Then one day I lost sight in my right eye; it came back in few minutes, then it happened again. My Dr. had me go to ER, she thought I may of had a mini stroke. Spent 4 days in hospital, many tests, cat scans, MRI, Drs thought it was Giant cell arteritis & that was confirmed by a biopsy of the artery along my hairline above my eye. I started on 60 milligrams of Prednisone daily, I am now down to 12.5, next week 10, & am waiting to start Actemra by injection.